The 20 Best Familial Porencephaly Doctors Near Me in Kansas City, MO

Find the Top Familial Porencephaly Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 31 doctor with experience in Familial Porencephaly near Kansas City, MO. Of these, 29 are Experienced and 2 are Advanced.

Location
LocationClose
31 providers found
    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Truman Inpatient PSYCH Unit

    2301 Holmes St, 
    Kansas City, MO 
     (1.1 miles away)
    Languages Spoken:
    English

    Natasha Acosta is a Radiologist practicing medicine in Kansas City, Missouri. Dr. Acosta is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Cerebelloolivary Atrophy, Olivopontocerebellar Atrophy, Primary Familial Brain Calcification, and Aseptic and Alopecic Nodules of Scalp (AANS).

    Experienced in Familial Porencephaly
    Radiology | Pediatric Radiology
    Experienced in Familial Porencephaly
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
     (1.1 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Rachel Berkovich is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. She has been practicing medicine for over 18 years. Dr. Berkovich is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her clinical expertise encompasses Familial Porencephaly, Choroid Plexus Cyst, Arachnoid Cysts, and Cerebellum Agenesis Hydrocephaly. Dr. Berkovich is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Advanced in Familial Porencephaly
    Advanced in Familial Porencephaly

    Cambridge Tower A

    3825 Cambridge Street, 
    Kansas City, KS 
     (3.3 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English, Italian
    Accepting New Patients
    Offers Telehealth

    Paul Camarata is a Neurosurgery provider practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 40 years. Dr. Camarata is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Meningioma, Radiation Induced Meningioma, Neurofibromatosis Type 2 (NF2), Awake Craniotomy, and Thrombectomy. Dr. Camarata is board certified in American Board Of Neurological Surgery, Neurological Surgery - 1998. Dr. Camarata is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Familial Porencephaly
    Advanced in Familial Porencephaly

    Cambridge Tower A

    3825 Cambridge Street, 
    Kansas City, KS 
     (3.3 miles away)
    Experience:
    26+ years
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients
    Offers Telehealth

    Roukoz Chamoun is a Neurosurgery provider practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 26 years. Dr. Chamoun is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pituitary Tumor, Hypothalamic Tumor, Awake Craniotomy, and Gastrostomy. Dr. Chamoun is board certified in American Board Of Neurological Surgery, Neurological Surgery - 2015. Dr. Chamoun is currently accepting new patients.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Diagnostic Imaging Centers P.A.

    4801 Main St Ste 200, 
    Kansas City, MO 
     (4.5 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Kaley Pippin is a Radiologist practicing medicine in Kansas City, Missouri. She has been practicing medicine for over 17 years. Dr. Pippin is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Mohr-Tranebjaerg Syndrome, Aicardi-Goutieres Syndrome, PEHO Syndrome, and X-Linked Intellectual Disability, Siderius Type.

    Experienced in Familial Porencephaly
    Neuroradiology
    Experienced in Familial Porencephaly
    Neuroradiology

    Diagnostic Imaging Centers P.A.

    4801 Main St Ste 200, 
    Kansas City, MO 
     (4.5 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Numukunda Darboe is a Neuroradiologist practicing medicine in Kansas City, Missouri. He has been practicing medicine for over 17 years. Dr. Darboe is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Tarlov Cysts, Scoliosis, and PEHO Syndrome.

    Experienced in Familial Porencephaly
    Neuroradiology
    Experienced in Familial Porencephaly
    Neuroradiology

    Diagnostic Imaging Centers P.A.

    4801 Main St Ste 200, 
    Kansas City, MO 
     (4.5 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Mitchell Guenther is a Neuroradiologist practicing medicine in Kansas City, Missouri. He has been practicing medicine for over 10 years. Dr. Guenther is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Mohr-Tranebjaerg Syndrome, X-Linked Intellectual Disability, Siderius Type, PEHO Syndrome, and Aicardi-Goutieres Syndrome.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Landon Center On Aging

    3599 Rainbow Boulevard, 
    Kansas City, KS 
     (3.2 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Jorge Kawano is a Neurologist practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 21 years. Dr. Kawano is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Stroke, Memory Loss, Migraine, and Transient Ischemic Attack (TIA). Dr. Kawano is board certified in American Board Of Psychiatry And Neurology, Vascular Neurology - 2016 and American Board Of Psychiatry And Neurology, Neurology - 2014. Dr. Kawano is currently accepting new patients.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Cambridge Tower A

    3825 Cambridge Street, 
    Kansas City, KS 
     (3.3 miles away)
    Experience:
    22+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Brian Milligan is a Neurosurgery provider practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 22 years. Dr. Milligan is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Glioblastoma, Astrocytoma, Gliosarcoma, Awake Craniotomy, and Balloon Sinuplasty. Dr. Milligan is board certified in American Board Of Neurological Surgery, Neurological Surgery - 2016. Dr. Milligan is currently accepting new patients.

    Experienced in Familial Porencephaly
    Internal Medicine
    Experienced in Familial Porencephaly
    Internal Medicine

    Truman Inpatient PSYCH Unit

    2301 Holmes St, 
    Kansas City, MO 
     (1.1 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Scott Reifeiss is an Internal Medicine provider practicing medicine in Kansas City, Missouri. He has been practicing medicine for over 10 years. Dr. Reifeiss is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Herniated Disk, Tarlov Cysts, Caudal Regression Syndrome, and Spondylocarpotarsal Synostosis Syndrome.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Sports Rehab & Physical Therapy Associates Inc

    4320 Wornall Rd Ste 710, 
    Kansas City, MO 
     (3.0 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Tarek El Ahmadieh is a Neurosurgery provider practicing medicine in Kansas City, Missouri. He has been practicing medicine for over 17 years. Dr. El Ahmadieh is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Dysembryoplastic Neuroepithelial Tumors (DNET), Brain Stem Cancer, Meningioma, Lordosis, and Awake Craniotomy.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Sports Rehab & Physical Therapy Associates Inc

    4320 Wornall Rd Ste 710, 
    Kansas City, MO 
     (3.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jonathan Breshears is a Neurosurgery provider practicing medicine in Kansas City, Missouri. Dr. Breshears is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Meningioma, Radiation Induced Meningioma, Schwannoma, Awake Craniotomy, and Gamma Knife Radiosurgery.

    Experienced in Familial Porencephaly
    Neurosurgery
    Experienced in Familial Porencephaly
    Neurosurgery

    Meritas Health Corp.

    2750 Clay Edwards Dr Ste 410, 
    Kansas City, MO 
     (3.4 miles away)
    Languages Spoken:
    English

    Ammar Hawasli is a Neurosurgery provider practicing medicine in Kansas City, Missouri. Dr. Hawasli is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cervical Spondylosis, Spinal Stenosis, Spondylolisthesis, Osteotomy, and Laminectomy.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Northland Radiology

    2800 Clay Edwards Dr, 
    Kansas City, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Timothy Waltner is a Radiologist practicing medicine in Kansas City, Missouri. Dr. Waltner is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, Pleurisy, Pleural Effusion, and Bone Marrow Aspiration.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Northland Radiology

    2800 Clay Edwards Dr, 
    Kansas City, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Roger Ivey is a Radiologist practicing medicine in Kansas City, Missouri. Dr. Ivey is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, Cerebellar Degeneration, Vertebroplasty, and Bone Graft.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Northland Radiology

    2800 Clay Edwards Dr, 
    Kansas City, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Christopher Formen is a Radiologist practicing medicine in Kansas City, Missouri. Dr. Formen is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, Cerebellar Degeneration, Pleurisy, and Bone Marrow Aspiration.

    Experienced in Familial Porencephaly
    Neuroradiology
    Experienced in Familial Porencephaly
    Neuroradiology

    Research Medical Center

    2316 E Meyer Blvd, 
    Kansas City, MO 
     (6.4 miles away)
    Languages Spoken:
    English

    Graham Lee is a Neuroradiologist practicing medicine in Kansas City, Missouri. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Meningioma, Headache, Cervical Myelopathy, and Gastrostomy.

    Experienced in Familial Porencephaly
    Neuroradiology
    Experienced in Familial Porencephaly
    Neuroradiology

    Office

    9100 W 74th St, 
    Overland Park, KS 
     (9.4 miles away)
    Languages Spoken:
    English

    Jeremy Jagoda is a Neuroradiologist practicing medicine in Overland Park, Kansas. Dr. Jagoda is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Herniated Disk, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, and Scoliosis.

    Experienced in Familial Porencephaly
    Neuroradiology
    Experienced in Familial Porencephaly
    Neuroradiology

    Ambulatory Surgery Center

    10720 Nall Avenue, 
    Overland Park, KS 
     (12.2 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Leever is a Neuroradiologist practicing medicine in Overland Park, Kansas. He has been practicing medicine for over 21 years. Dr. Leever is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Pediatric Low-Grade Glioma (pLGG), CAPOS Syndrome, Meningioma, and Cerebral Arteriovenous Malformation. Dr. Leever is board certified in American Board Of Radiology, Neuroradiology - 2012 and American Board Of Radiology, Diagnostic Radiology - 2010. Dr. Leever is currently accepting new patients.

    Experienced in Familial Porencephaly
    Experienced in Familial Porencephaly

    Office

    2330 E Meyer Blvd Ste 411, 
    Kansas City, MO 
     (7.9 miles away)
    Languages Spoken:
    English

    Jonathan Chilton is a Neurosurgery provider practicing medicine in Kansas City, Missouri. Dr. Chilton is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Trigeminal Neuralgia, Meningioma, Radiation Induced Meningioma, Microdiscectomy, and Cervical Disc Surgery.

    Showing 1-20 of 31

    Last Updated: 04/28/2026

    What is the definition of Familial Porencephaly?

    Familial porencephaly is part of a group of conditions called the COL4A1-related disorders. The conditions in this group have a range of signs and symptoms that involve fragile blood vessels. In familial porencephaly, fluid-filled cysts develop in the brain (porencephaly) during fetal development or soon after birth. These cysts typically occur in only one side of the brain and vary in size. The cysts are thought to be the result of bleeding within the brain (hemorrhagic stroke). People with this condition also have leukoencephalopathy, which is a change in a type of brain tissue called white matter that can be seen with magnetic resonance imaging (MRI).

    When should I see a Familial Porencephaly doctor near Kansas City, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Familial Porencephaly doctor near Kansas City, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Familial Porencephaly doctors near Kansas City, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Familial Porencephaly doctors near Kansas City, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Familial Porencephaly doctor near Kansas City, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Familial Porencephaly doctor search results page. 

    Why is it important to get a second opinion from a different Familial Porencephaly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Familial Porencephaly doctor near Kansas City, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Familial Porencephaly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Familial Porencephaly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Familial Porencephaly doctors near Kansas City, MO?

    Look for the filter feature on the left side of the Familial Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Familial Porencephaly doctor that offers video calls?

    Look for the filter feature on the left-side of the Familial Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Familial Porencephaly Doctors by city